You join us for the fourth in our weekly blogs dedicated to taking an accessible look at Multifocal Motor Neuropathy - or MMN. In previous editions, we've looked at what MMN is, the common MMN symptoms, and how you might expect MMN to be diagnosed. So what happens when someone finally gets a diagnosis of MMN? What does treatment look like? Can it be treated? Can it be cured? Let's start with - can it be cured? The short answer is, no. There is no current cure for MMN at the

You join us for our third in our series of accessible, bite sized blogs all about MMN. In week one, we took a general overview of the condition, and last week we investigated some of MMN's classic symptoms and warning signs. This week, let's look at what happens next. Misdiagnosis and Timeline We'll be honest, this part is hard. Officially, your time to diagnosis should be around one to two years. However - and it's important we say this is anecdotal from conversations with

Last week we took a look into MMN as a whole - what is this rare condition? What does diagnosis and treatment look like? And of course, what are the symptoms of MMN? This week, we're diving into that last question in a little more detail. We'll look at some of the early signs, and key symptoms you should look out for.  Early Signs of MMN MMN often starts subtly, which makes it easy to miss in the early stages. Many people later diagnosed with the condition noticed a weakness

As February is MMN Awareness Month, it is time to not just shine a light on MMN, but also on ourselves about how we support people impacted by MMN. 

Multifocal Motor Neuropathy , or MMN for short, is a rare, life-long condition that affects the motor nerves, which control muscle movement. This leads to muscle weakness, often starting in the hands or arms. MMN is very rare, impacting 0.6 people per 100,000. Anyone can get MMN, but it is more common in older men than women. However, we have met people from all walks of life living with the condition. MMN is not infectious, meaning you can't pass it along to anyone else. Cau

If you're living with GBS, CIDP, MMN, or another Inflammatory Neuropathy, you may have questions about how today's budget impacts you. Are you having trouble getting your head around what was said, or just fancy a quick summary of the key points? Well, if so, our Chief Executive is here with his traditional reflection on the budget and what it means for people impacted by Inflammatory Neuropathies, and for the charity itself.    To be honest, there wasn’t a great deal of ant

Yesterday, NHS England published a new service specification for Adult Neurology Services. Our Chief Executive, Rich Collins, fed back...

We've been talking about Peer Support for GBS, CIDP, MMN, and the other conditions we support at the Inflammatory Neuropathies UK office....

So, after much consultation, feedback, and discussion, the government today released its new 10 year plan. Here at Inflammatory...

Inflammatory Neuropathies UK's Chief Executive, Rich Collins, on our rebrand: Well, this is very big news. GAIN is changing its name to...

In our final blog on CIDP, we are going to have a quick look at the variants of CIDP. If you want more information on CIDP then have a...

One of our main jobs here at Inflammatory Neuropathies UK is giving support and advice to people impacted by Inflammatory Neuropathies....

The last few weeks we have been publishing blogs about CIDP , and in this week’s post we are looking at the impact of CIDP.  Impact of...

Many people want to know what to expect on their CIDP journey, and while it is difficult to predict and important to note that everyone’s...

In this ongoing blog series we are continuing to look at CIDP, what it is, and how it impacts people directly, and those around them....

This is our fourth weekly blog about CIDP, a rare Inflammatory Neuropathy and autoimmune condition impacting around 600 new people in the...

In this ongoing series of blogs about CIDP, we have already looked at what CIDP is , and CIDP symptoms . Over the next few weeks we will...

Last time we gave you an overall idea of what Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is. Over the next few weeks we...

Over the last few months we have written a lot about GBS, but that isn’t the only Inflammatory Neuropathy that we care about. So, lets...

So, you have had a Guillain-Barré Syndrome (GBS) diagnosis, and you are trying to understand what this means. Where do you for advice?...