Become a Trustee
We’re looking for a new Trustee, and we’d love to hear from you.
At Inflammatory Neuropathies UK, we support people living with rare, life-changing conditions like Guillain-Barré Syndrome, CIDP, and MMN. These are hard hitting conditions that impact people and families across the UK.
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That’s why this role matters.
We’re looking for a new Trustee to join our Board. You don’t need to be a “Professional Trustee”. We want someone who understands, thinks clearly, and is willing to speak up.
We’re especially interested to hear from you if you’ve got experience in:
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Health and social care
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Retail (especially customer insight or income generation)
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Compliance and governance
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Learning and development
You don’t need all of these (or any if you have other skills), we just want to know what you can offer us and our community.
What you’d be doing
It's simple, we need you to help us make good decisions.
That means shaping direction, keeping us on track, asking the right questions, and supporting the team to do their best work.
What’s involved
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A monthly online one hour meeting
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An annual AGM and meeting in person
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A few other meetings as required
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All in, around 30–40 hours a year
What we offer
It’s a voluntary role, but your expenses will be covered. While we can’t offer financial gain, we can offer support, mentoring, development opportunities, and the chance to be part of an amazing community.
Who are we looking for
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Someone who’s already a Trustee
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Someone thinking, “I could do that, I just haven’t yet”
Lived experience of these conditions (personally or through someone close) is really welcome, but it isn’t essential.
Why you?
Because this is one of those roles where your input genuinely changes things.
You’ll help shape support, services, and research for people who really need it. This won’t be from a distance, but in ways that impact on real lives.
It’s also a really good opportunity to build skills, get Board experience, and get a highlight on your CV.
How to apply
If this kind of role excites you, then send in your CV and a supporting statement to rich@inflammatoryneuropathies.uk.
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The statement needs to:
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Outline why you want to be a Trustee with Inflammatory Neuropathies UK
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Tell us what you would bring to the Board ​
The closing date for applications is 31st May 2026
If you want more information, want an informal chat, or are intrigued but want to know more, then email Rich Collins at rich@inflammatoryneuropathies.uk
Make a difference. Be our next Trustee
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Read the Trustee Role Description
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