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Pedro's Story | GBS
It started suddenly. Vimal Pedro Patel began feeling unwell, and within 48 hours he was completely paralysed from the neck down. He sat down with us to share his story of recovery and running. Pedro was admitted to intensive care and diagnosed with a particularly severe case of Guillain-Barré Syndrome (GBS) that left him weak, in pain, and unable to move anything except his eyes. He would spend almost six months in ICU, followed by two months on a ward and a long period of re
Chris
5 days ago3 min read
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GBS - 21 Months On | Sue's Story
I’m a big fan of holidaying in Greece and usually travel solo arranging all elements of my holiday independently. In late September 2023...
Chris
Oct 106 min read
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Hand Control Driving | Julie Wilson's GBS/AMSAN Adaptions
The residuals of an acute Inflammatory Neuropathy like GBS, or the ongoing impact of a chronic condition like CIDP, can often mean...
Chris
Sep 252 min read
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My Lake District Fell Dream | CIDP
Nigel shares his story of CIDP, goal setting, climbing hills, and the importance of a dream.
Chris
Sep 185 min read
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Paul's Story | CIDP
We've been sharing weekly stories, old and new, from our supporters trying to highlight the wide impact of Inflammatory Neuropathies....
Chris
Sep 128 min read
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Rowan's Story | Childhood CIDP
Thanks to Rowan's mum, Anna, for sharing his story Before Rowan’s diagnosis of CIDP, he was just like any other little boy. He was two...
Chris
Sep 54 min read
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Inflammatory Neuropathies UK joins the Connect Immune Research Partnership
The newest member of the innovative autoimmune research initiative, Connect Immune Research, is Inflammatory Neuropathies UK....
Chris
Sep 43 min read
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Kathleen's Story | GBS
Kathleen's experience of Guillain-Barré Syndrome (GBS) was originally posted on our previous GAIN website. We're bringing some stories...
Chris
Aug 223 min read
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Kevin's Story | GBS Recurrence
I'm Kevin, from Kent, and I had Guillain-Barré in 2008. I was paralysed but avoided being put into an induced coma. My recovery was...
Chris
Aug 153 min read
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New Specification for Adult Neurology Services - Rich's View
Yesterday, NHS England published a new service specification for Adult Neurology Services. Our Chief Executive, Rich Collins, fed back...
Chris
Aug 144 min read
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What is Peer Support?
We've been talking about Peer Support for GBS, CIDP, MMN, and the other conditions we support at the Inflammatory Neuropathies UK office....
Chris
Aug 93 min read
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To Hell and Back | Linda's Guillain-Barré Syndrome Story
A bit about me – in early 2019, I was about to reach my 51st birthday. As a single working mum of three, I had a busy life, two jobs, six...
Chris
Aug 89 min read
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Nicole's Story | GBS
Nicole with her youngest girl It feels mad to be writing my Guillain-Barre Syndrome story down as I never thought id do it. I’m a very...
Chris
Aug 15 min read
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Neil's Story | GBS
My Guillain Barré Syndrome story started with prostate cancer. In December 2011 I was diagnosed with prostate cancer, unfortunately it...
Chris
Jul 234 min read
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Abrysvo and Arexvy: be alert to a small risk of Guillain-Barré syndrome following vaccination in older adults
Obviously, the advice from the MHRA is concerning. We would always be worried about any increased risk of Guillain-Barré Syndrome for...
Chris
Jul 81 min read
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The 10 year plan | our thoughts
So, after much consultation, feedback, and discussion, the government today released its new 10 year plan. Here at Inflammatory...
Chris
Jul 34 min read
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Say hello to Inflammatory Neuropathies UKÂ
Inflammatory Neuropathies UK's Chief Executive, Rich Collins, on our rebrand: Well, this is very big news. GAIN is changing its name to...
Chris
Apr 303 min read
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CIDP and its Variants
In our final blog on CIDP, we are going to have a quick look at the variants of CIDP. If you want more information on CIDP then have a...
Chris
Apr 302 min read
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What advice can we give someone impacted by CIDP?
One of our main jobs here at Inflammatory Neuropathies UK is giving support and advice to people impacted by Inflammatory Neuropathies....
Chris
Apr 303 min read
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What is the Impact of CIDP?
The last few weeks we have been publishing blogs about CIDP , and in this week’s post we are looking at the impact of CIDP. Impact of...
Chris
Apr 304 min read
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