When you work with your hands for a living, what do you do when those hands stop working? Thank you to Jason Miles for sharing his GBS story in our pre-Christmas Newsletter. This is a powerful story touching on emotions around losing work and passion, over indulgence, and the importance of letting others help you. Here's his story, IN his own words: What do you do when a tradesman’s hands stop working? I’ve asked myself that question more times than I can over these last thr

Thank you, Leanne, for sharing a story about experiencing Guillain-Barré Syndrome (GBS) as a young mother. I was a healthy 34-year-old woman, the mother of a one-year-old daughter and a three-month-old son, living a life full of energy and family moments. Then, almost without warning, it began - weakness in my legs and a strange pins-and-needles sensation in my hands and toes. At first, it seemed minor, but the symptoms grew, gradually stealing my strength. I tried to seek he

If you're living with GBS, CIDP, MMN, or another Inflammatory Neuropathy, you may have questions about how today's budget impacts you. Are you having trouble getting your head around what was said, or just fancy a quick summary of the key points? Well, if so, our Chief Executive is here with his traditional reflection on the budget and what it means for people impacted by Inflammatory Neuropathies, and for the charity itself.    To be honest, there wasn’t a great deal of ant

It started suddenly. Vimal Pedro Patel began feeling unwell, and within 48 hours he was completely paralysed from the neck down. He sat down with us to share his story of recovery and running. Pedro was admitted to intensive care and diagnosed with a particularly severe case of Guillain-Barré Syndrome (GBS) that left him weak, in pain, and unable to move anything except his eyes. He would spend almost six months in ICU, followed by two months on a ward and a long period of re

I’m a big fan of holidaying in Greece and usually travel solo arranging all elements of my holiday independently. In late September 2023...

The residuals of an acute Inflammatory Neuropathy like GBS, or the ongoing impact of a chronic condition like CIDP, can often mean...

Nigel shares his story of CIDP, goal setting, climbing hills, and the importance of a dream.

We've been sharing weekly stories, old and new, from our supporters trying to highlight the wide impact of Inflammatory Neuropathies....

Thanks to Rowan's mum, Anna, for sharing his story Before Rowan’s diagnosis of CIDP, he was just like any other little boy. He was two...

The newest member of the innovative autoimmune research initiative, Connect Immune Research, is Inflammatory Neuropathies UK....

Kathleen's experience of Guillain-Barré Syndrome (GBS) was originally posted on our previous GAIN website. We're bringing some stories...

I'm Kevin, from Kent, and I had Guillain-Barré in 2008. I was paralysed but avoided being put into an induced coma. My recovery was...

Yesterday, NHS England published a new service specification for Adult Neurology Services. Our Chief Executive, Rich Collins, fed back...

We've been talking about Peer Support for GBS, CIDP, MMN, and the other conditions we support at the Inflammatory Neuropathies UK office....

A bit about me – in early 2019, I was about to reach my 51st birthday. As a single working mum of three, I had a busy life, two jobs, six...

Nicole with her youngest girl It feels mad to be writing my Guillain-Barre Syndrome story down as I never thought id do it. I’m a very...

My Guillain Barré Syndrome story started with prostate cancer. In December 2011 I was diagnosed with prostate cancer, unfortunately it...

Obviously, the advice from the MHRA is concerning. We would always be worried about any increased risk of Guillain-Barré Syndrome for...

So, after much consultation, feedback, and discussion, the government today released its new 10 year plan. Here at Inflammatory...

Inflammatory Neuropathies UK's Chief Executive, Rich Collins, on our rebrand: Well, this is very big news. GAIN is changing its name to...