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Online Get Togethers
If you want to chat about what you are experiencing with others who are going through similar or the same issues, we host online monthly get togethers. All you need is access to a computer or a phone with an internet connection and with one click you can chat, ask questions, seek support, or simply have a good old moan!
These meetings are held over Zoom and are always attended and facilitated by us.
You can join as often - or as little - as you want, there is no pressure and no commitment.
Currently there are three separate monthly Get Togethers; one for GBS (the 3rd Thursday of each month at 2pm) one for CIDP (the 4th Thursday of each month at 2pm), and a new lunchtime session - IN between bites (the second Tuesday at 12pm).
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Please note, if you've been diagnosed with a variant of GBS or CIDP, you're very welcome to join us! You may not meet someone with the exact same rare variant you have (though you never know who will join us!), but you will meet people who understand the impact an inflammatory neuropathy may have on you.
Just join when you feel you need the support - simply click on the Zoom links below and follow the instructions.
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To join our GBS chat, click here
3rd Thursday at 2pm - 20th Aug | 17th Sep | 15 Oct | 19 Nov | 17 Dec
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To join our CIDP chat, click here
4th Thursday at 2pm -27th Aug | 24th Sep | 22 Oct | 26 Nov
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To join our MMN chat, click here
2nd Tuesday at 7pm - 8th Sep | 13th Oct | 10th Nov | 8th Dec
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If you want to check the date of our next meeting then see above.
Of course, if you have any ideas about expanding or changing these, we would love to hear from you. Get in touch on hello@inflammatoryneuropathies.uk or on 01529 469910.
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Local Get Togethers
As much as friends and family can offer support and a listening ear, sometimes it helps to talk to people who really understand. The conditions we support are rare and, chances are you have never met anyone who is in the same position as you.
That's why we run local get togethers; a safe space for members, friends, families, carers and other supporters, to meet and offer each other help and advice. You can share your stories and experiences - and, importantly, know that you are not alone.
Essex
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Our latest group met for the first time in 2025, and have their 2026 dates planned out already. Come along to Christ Church Hall, Perry Street, Billericay, CM12 0NX on the following dates between 11:00 and 12:30.
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2026:
Sept 5th
November 28th
Lancashire and Cumbria
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If you live in the North West of England the Lancashire and Cumbria group meets quarterly on a Saturday at 1.30pm in Catterall Village Hall , Garstang Road, Catterall, PR3 1XN. This is our longest standing group with a wealth of knowledge and experience they're ready and willing to share with new and old faces alike.
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2026:
September 5th
December 5th
Yorkshire
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If you're in the Yorkshire area, our group is IN transit around the area, aiming to visit as many locations in the district as possible. The last date was the 8th August 2026 in Holy Trinity Community Hall, Meanwood, Leeds, LS6 4LF. We hope you can join Jon and his touring Get Together soon!
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New dates and locations coming soon
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We would love to see these vital groups spread across the UK and Ireland and there are plans for more to come soon. If you would like to set up something in your area, please contact us on 01529 469910, or email hello@inflammatoryneuropathies.uk ​