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Looking Beyond the Diagnosis: Why the New Inflammatory Neuropathies Report Matters
A new European white paper has put the spotlight on Inflammatory Neuropathies and, reading it, we found ourselves thinking, "We've been saying this for years."

Rich Collins
Jul 314 min read


Welfare reform should be about people, not paperwork
The interim findings from the government's Timms Review into Personal Independence Payments (PIP) are out, but what do they mean for people impacted by Inflammatory Neuropathies

Rich Collins
Jul 244 min read


Community is about more than where you live. It’s about who you are, and who you link with
Community means something different to different people. This isn't an argument against place based communities, it's an argument against forgetting communities of interest

Rich Collins
Jul 164 min read


Looking Back, Looking Forward: What Our Impact Report Tells Us
Our new Impact Report is out now. But what does it mean, what have we done, and what are we doing.

Rich Collins
Jun 123 min read


Responding to consultations: Making sure the Inflammatory Neuropathies Community is always heard
Why do we respond to public consultations. Because you need to be heard.

Rich Collins
Jun 53 min read


New report on Living with an Inflammatory Neuropathy
We had some excellent results from the My Neuro Survey findings, but we wanted to dig deeper.

Rich Collins
May 273 min read


IN UK at the ABN
This year, we made the decision to attend the Association of British Neurologists Conference. On paper, it’s a professional gathering of experts. But for us at Inflammatory Neuropathies UK, it’s something much more human than that. It’s all about people, and more specifically our Community. People who are living with rare, often misunderstood conditions. People who may still be searching for a diagnosis. People who don’t yet know that support, information and community exist

Rich Collins
May 82 min read


Why GBS and CIDP Awareness Month matters, and why I’m asking you to get involved
Every May, something powerful happens. Across the UK and beyond, people impacted by Inflammatory Neuropathies all look to raise awareness and talk about their condition. GBS and CIDP Awareness Month isn’t just a date in the calendar for us at Inflammatory Neuropathies UK. It’s one of the few moments in the year where our whole community (people living with conditions like Guillain-Barré syndrome (GBS), CIDP, and other Inflammatory Neuropathies, along with their families, cli

Rich Collins
May 13 min read


New Specification for Adult Neurology Services - Rich's View
Yesterday, NHS England published a new service specification for Adult Neurology Services. Our Chief Executive, Rich Collins, fed back...
Chris
Aug 14, 20254 min read


What is Peer Support?
We've been talking about Peer Support for GBS, CIDP, MMN, and the other conditions we support at the Inflammatory Neuropathies UK office....
Chris
Aug 9, 20253 min read


Abrysvo and Arexvy: be alert to a small risk of Guillain-Barré syndrome following vaccination in older adults
Obviously, the advice from the MHRA is concerning. We would always be worried about any increased risk of Guillain-Barré Syndrome for...
Chris
Jul 8, 20251 min read


The 10 year plan | our thoughts
So, after much consultation, feedback, and discussion, the government today released its new 10 year plan. Here at Inflammatory...
Chris
Jul 3, 20254 min read


Say hello to Inflammatory Neuropathies UK
Inflammatory Neuropathies UK's Chief Executive, Rich Collins, on our rebrand: Well, this is very big news. GAIN is changing its name to...
Chris
Apr 30, 20253 min read
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