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Pedro's Story | GBS
It started suddenly. Vimal Pedro Patel began feeling unwell, and within 48 hours he was completely paralysed from the neck down. He sat down with us to share his story of recovery and running. Pedro was admitted to intensive care and diagnosed with a particularly severe case of Guillain-Barré Syndrome (GBS) that left him weak, in pain, and unable to move anything except his eyes. He would spend almost six months in ICU, followed by two months on a ward and a long period of re
Chris
5 days ago3 min read
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Hand Control Driving | Julie Wilson's GBS/AMSAN Adaptions
The residuals of an acute Inflammatory Neuropathy like GBS, or the ongoing impact of a chronic condition like CIDP, can often mean...
Chris
Sep 252 min read
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My Lake District Fell Dream | CIDP
Nigel shares his story of CIDP, goal setting, climbing hills, and the importance of a dream.
Chris
Sep 185 min read
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Rowan's Story | Childhood CIDP
Thanks to Rowan's mum, Anna, for sharing his story Before Rowan’s diagnosis of CIDP, he was just like any other little boy. He was two...
Chris
Sep 54 min read
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Kathleen's Story | GBS
Kathleen's experience of Guillain-Barré Syndrome (GBS) was originally posted on our previous GAIN website. We're bringing some stories...
Chris
Aug 223 min read
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Kevin's Story | GBS Recurrence
I'm Kevin, from Kent, and I had Guillain-Barré in 2008. I was paralysed but avoided being put into an induced coma. My recovery was...
Chris
Aug 153 min read
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To Hell and Back | Linda's Guillain-Barré Syndrome Story
A bit about me – in early 2019, I was about to reach my 51st birthday. As a single working mum of three, I had a busy life, two jobs, six...
Chris
Aug 89 min read
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Nicole's Story | GBS
Nicole with her youngest girl It feels mad to be writing my Guillain-Barre Syndrome story down as I never thought id do it. I’m a very...
Chris
Aug 15 min read
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Neil's Story | GBS
My Guillain Barré Syndrome story started with prostate cancer. In December 2011 I was diagnosed with prostate cancer, unfortunately it...
Chris
Jul 234 min read
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John's Story | MMN
John Navarro was recently interviewed by Chris from Inflammatory Neuropathies UK. The article featured in our newsletter and we would...
Chris
Apr 254 min read
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Denyse's Story | GBS
It all started with my going away to see my sister Lou for a few days, then going to a gig in Chester. When I returned home on the 19th...
Chris
Apr 253 min read
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Dionne's Story | GBS
I woke up on 19th September 2021, and my whole life changed. Pins and needles in hands & arm, within a couple of hours I was dragging my...
Chris
Apr 253 min read
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Pete’s Story | AMSAN
I was diagnosed with Guillain Barré Syndrome (GBS) last May. The 16th to be precise. Since then my life has been split in two… BGB and...
Chris
Apr 255 min read
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