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  • Newsletters | Inflammatory Neuropathies UK

    Newsletters One of the most important things we do as a charity is make sure we’re really connecting with you — our community. Every day, you put your trust in us. You open up about your worries, lean on us for support, share your stories, and generously give to our cause. That means the world to us, and as you're so open with us, it’s only right that we keep you fully in the loop about our activities and actions. With that in mind, we’ve got two newsletters we send out regularly to keep you posted on everything happening in the Inflammatory Neuropathies UK world. First up is our monthly IN brief - a quick, four-page snapshot that keeps you in the know about what we’re working on and what’s coming up. Then there’s our quarterly Lowdown - this is roughly twenty pages packed with updates, personal stories from our incredible supporters, and a real behind-the-scenes look at what’s been going on across the charity. If something’s happening at Inflammatory Neuropathies UK, you’ll hear about it there. You can find an archive of our older Updates and Lowdown's over on our previous GAIN website, and scroll down for the latest from Inflammatory Neuropathies UK. Newsletter Archive (GAIN) Previous editions: IN brief | June 25 | #1 IN brief | July 25 | #2 IN brief | August 25 | #3 IN brief | October 25 | #4 IN brief | November 25 #5 IN brief | January 26 | #6 IN brief | February 26 | #7 IN brief | April 26 | #8 IN brief | May 26 | #9 INdepth | May 25 | #1 INdepth | September 25 | #2 INdepth | December 25 | #3 INdepth | March 26 | #4 Our latest newsletter can be enjoyed below, or downloaded by clicking here

  • Vacancies | Inflammatory Neuropathies UK

    IN the team Current Vacancies Join us and help us make things better for people living with Inflammatory Neuropathies. We are currently looking for a Marketing Executive. If this could be you, click here

  • Blogs | Inflammatory Neuropathies UK

    Inflammatory Neuropathies UK create short and easy to access blogs that describe in understandable, simple language, the impact of Guillain-Barré syndrome (GBS), CIDP, MMN, and other Inflammatory Neuropathies. We also use this section for our Chief Execs views on the latest in UK policy that impacts people with these conditions, and personal, real life stories of people living with GBS, CIDP, MMN and more in the UK. Blogs The latest news and opinions from the Inflammatory Neuropathies UK team. We also have a blog series where we take an accessible look at the conditions we support. These started last year with GBS, and our CIDP blog series came to an end in April 2025. Filter the blogs via: GBS Blog Series CIDP Blog Series Responding to consultations: Making sure the Inflammatory Neuropathies Community is always heard Why do we respond to public consultations. Because you need to be heard. New report on Living with an Inflammatory Neuropathy We had some excellent results from the My Neuro Survey findings, but we wanted to dig deeper. IN UK at the ABN This year, we made the decision to attend the Association of British Neurologists Conference. On paper, it’s a professional gathering of experts. But for us at Inflammatory Neuropathies UK, it’s something much more human than that. It’s all about people, and more specifically our Community. People who are living with rare, often misunderstood conditions. People who may still be searching for a diagnosis. People who don’t yet know that support, information and community exist Why GBS and CIDP Awareness Month matters, and why I’m asking you to get involved Every May, something powerful happens. Across the UK and beyond, people impacted by Inflammatory Neuropathies all look to raise awareness and talk about their condition.  GBS and CIDP Awareness Month isn’t just a date in the calendar for us at Inflammatory Neuropathies UK. It’s one of the few moments in the year where our whole community (people living with conditions like Guillain-Barré syndrome (GBS), CIDP, and other Inflammatory Neuropathies, along with their families, cli MMN - How is Multifocal Motor Neuropathy Treated? You join us for the fourth in our weekly blogs dedicated to taking an accessible look at Multifocal Motor Neuropathy - or MMN. In previous editions, we've looked at what MMN is, the common MMN symptoms, and how you might expect MMN to be diagnosed. So what happens when someone finally gets a diagnosis of MMN? What does treatment look like? Can it be treated? Can it be cured? Let's start with - can it be cured? The short answer is, no. There is no current cure for MMN at the MMN - How is Multifocal Motor Neuropathy diagnosed? You join us for our third in our series of accessible, bite sized blogs all about MMN. In week one, we took a general overview of the condition, and last week we investigated some of MMN's classic symptoms and warning signs. This week, let's look at what happens next. Misdiagnosis and Timeline We'll be honest, this part is hard. Officially, your time to diagnosis should be around one to two years. However - and it's important we say this is anecdotal from conversations with 1 2 3 4 5

  • IN the water | Inflammatory Neuropathies UK

    Inflammatory Neuropathies UK fundraising challenge for 2026. Raisng funds for Guillain-Barre Syndrome, GBS, CIDP, and MMN IN the water During GBS and CIDP Awareness Month 2026 we are encouraging everyone to help us raise funds and raise awareness by getting IN the water. Our community are always telling us how beneficial swimming is to recovery and to mobility, so that got us thinking about our 2026 Awareness Month challenge. Not everyone has access to a pool, or has the strength or ability to swim (for instance our Chief Exec can't manage a length!!) We wanted the challenge to be accessible to everyone, so we have come up with a some choices so that everyone can get INvolved. These are just some ideas. Feel free to use your imagination to come up with something water based that works for you. Get IN a pool You don't have to commit to swimming everyday, or to completing a swimmer's marathon (10,000m in case you were wondering), but if you want to set yourself a pool based challenge then why not think about what you can achieve, and get some sponsorship to support us help other people. Get IN the shower If you don't want to swim, walk/swim, or even get in a pool, then why not think about getting in the shower. Turn it down a bit, and give yourself a cool blast for a little while. You could even take a cool shower everyday for a month! Put your hands IN cold water If you want to get INvolved, and aren't impacted by an Inflammatory Neuropathy, then why not try feeling what it might be like. Many people with peripheral nerve damage have issues with fine motor skills, particularly in their fingers. While it isn't the same, you can (kind of) replicate the feeling by plunging your hands under a cold tap for a minute or two, or into a bowl of cool water until nice and cold, and tingly (again, though - not painfully!). Remove and dry them, and straight away try to send a message on your phone or button a shirt! It’s only a hint of what someone living with an Inflammatory Neuropathy might experience, but it’s a start to understanding life with the condition. Try it, tell your friends, and get them to do the same. Take a dip For those of you fancying something more extreme, and who really want a challenge, then why not try raising money for Inflammatory Neuropathies UK by taking a cold/cool bath, or getting in a cold pod, or even an ice bath. Always do this with supervision and the right support though, as cold water can be very dangerous. Raise Funds By raising funds for Inflammatory Neuropathies UK, you can help us reach and engage with more people impacted by GBS, CIDP, MMN, and other conditions. The more people we can reach, the more people we can support, and the more we can reduce the impact of these life-altering conditions. Your fundraising goes into support; raising awareness; funding, facilitating, and undertaking research; and advocating and campaigning for our amazing community. To raise vital funds through your IN the water challenge, head over to JustGiving and set up a fundraising page - Inflammatory Neuropathies UK - JustGiving To make it easier for people to donate, we also have an option to donate via text. It's a great way to donate then pass the challenge on to someone else to join in. Text COLD to 70470 to donate £10. Texts will cost the donation amount plus one standard network rate message, and you’ll be opting into hearing more from us. If you would like to donate but don’t wish to hear more from us, please text COLDNOINFO instead. Raise Awareness It's not all about money, we also need you to tell people all about GBS, CIDP, MMN, and other Inflammatory Neuropathies, as well as telling people about the charity itself. Make sure you share what you are doing on social media, using the hashtag #INthewater. And tag us in so we can see what you are up - @inflamneurouk. Feel free to send us some pics and stories too via hello@inflammatoryneuropathies.uk Tell all your family and friends what you are doing and why. Tell them about a condition that impacts you, or someone you know, and ask them to tell others. Or even better tell them to get INvolved themselves. Get INvolved This is all about having fun and making sure as many people as possible know about Inflammatory Neuropathies, and what living with them is like. Get INvolved, tell your friends, or get them INvolved as well. There will be medals and rewards for those taking part, so please tell us what you are planning to do by completing the form below.

  • Fundraise | Inflammatory Neuropathies UK

    Fundraise You may think there is little, or even nothing, you can do to help charities like us who are struggling with the impact that COVID left. So many events had to be cancelled - and as a result so much potential income was lost. We are feeling that pinch even years later. But, actually, you can make a world of difference. At home From Bake Sales to Ladies Days to Hill Climbs. Read More At work Payroll Giving, Give As You Earn, Volunteering & Tins. Read More Donate Fundraising or donating? Here's how to support us: Read More Gift Aid Make your donation worth 25% more, at no extra cost to you! Read More Fundraise: At home Yes, fundraising can be challenging, but it’s also highly rewarding - not to mention, a whole lot of fun. Whilst you are invaluably helping us, you will also be meeting like minded people and, by picking an activity you love, you will enjoy yourself at the same time. From bake sales to bingo nights, marathons to mountain climbing, there is no limit to where your imagination can take you. Of course, it's easier to stay committed when you are enjoying what you do - and passion is infectious so you are more likely to attract others on board to help you and us. You might not realise it, but every time you tell people what you’re up to and why, you’re also acting as an ambassador for us, raising awareness of the charity and the conditions it supports. Whether you want to take part in an event or run one yourself, we would love to hear from you and chat through your ideas so we can work together to achieve our goals. Call 01529 469910 (Mon-Fri 9am-3pm) email hello@inflammatoryneuropathies.uk Text Giving Once your campaign idea is agreed on and up and running, we can set you up with your own Text Giving campaign code, so your supporters can donate quickly and easily using their phone. As well as sharing the code across social media and amongst friends and family, you could even have posters and flyers printed to spread the word around your local community. Online donations We can supply you with a sponsorship form and collection box should you choose but, now, most people prefer to use an online platform to collect donations - it’s so much easier. JustGiving is a popular and easy-to-use online fundraising platform, for which we pay a monthly fee plus a (small) percentage of each donation and Gift Aid. In return, JustGiving manage payments, and even collect Gift Aid on our behalf. You can use the link below to start fundraising with your very own JustGiving page, and once you’re set up, you can share it with friends and family via social media. Don’t forget to add in a few words about what you’re doing and why, and post an occasional update to let everyone know how you’re getting on. Please set the expiry date on your fundraising page to within a couple of weeks of the date your event or campaign ends, as we only get notified that we need to contact our fundraisers with the total raised once a page is closed. Visit JustGiving and start fundraising Did you know that you can raise 65% more by telling your story on JustGiving, 17% more by sharing a fundraising goal, 23% more through pictures, and 8% more just by updating? Learn more here You can also raise funds: In memory of a loved one By leaving a gift in your will By playing our lottery or by signing up to the 200 Club Fundraise: At work Do you own a company or business and would like to get involved with a charity? Are you an employee and want to suggest some ideas of charitable work to upper management? Then read on! Payroll Giving Payroll Giving (also known as Give As You Earn) is one of the quickest, easiest and most flexible ways of donating to our charity. The scheme enables employees to make a donation straight from their gross salary tax-free. This means if an employee who pays standard rate tax donates £1 each month, the cost to them is only 78p on the basic tax rate or 60p on the higher tax rate. Payroll or HR departments will be able to provide details if they are running this scheme. There are many benefits: Not only is Payroll Giving a clear benefit for employees, there are many benefits to be found as an employer too. ● A Payroll Giving scheme is very easy to set up. ● Will fit in with your Corporate Social Responsibility policy. ● Can help to increase staff motivation and morale. ● Can boost your image as an employer. Matched giving Many companies will help charities through a matched giving scheme. Some will match pound for pound, and others will even double match donations made to registered charities by its employees. If you are making a gift to Inflammatory Neuropathies UK, please check with your Payroll or HR department whether your company operates a scheme like this as it could make your donation worth even more to us. Gifts in Kind If your company would like to support our work , but is unable to contribute financially, there are plenty of other ways to help. For example, we are always looking for raffle prizes for our events, so if you feel your company could help in this way, we would love to hear from you. We are also keen to extend our volunteering services and there may be ways in which your company can help us with this. Talk to us about this by contacting hello@inflammatoryneuropathies.uk or give us a call on 01529 469912 Collection Boxes Did you know that, as a country, we have £345 million in loose change in our homes, down the back of our sofas and in our cars? Why don’t we put that useless change into good use? Static collecting boxes are amongst the most effective and efficient forms of fundraising and also raise awareness (we can now claim Gift Aid on the contents of all collection boxes up to £5000). Can your business find a home for one of our collecting boxes? If so, please get in touch with hello@inflammatoryneuropathies.uk . How to donate Have you completed your fundraising and are ready to donate the funds? Or perhaps you’re simply looking to make a donation to support our work? Thank you! Your support means everything to us. Your generosity helps us fund vital research, provide emotional support counselling, and support our local groups doing important work in communities across the country. You can support us via: Enthuse Our trusted third party partner at https://inflammatoryneuropathies.enthuse.com/cp/4fcea/fundraiser#!/ Directly via our bank CAF Bank Inflammatory Neuropathies UK Sort code - 405240 Account no. - 00024633 Paying in by post Please make cheques payable to Inflammatory Neuropathies UK and send to: Inflammatory Neuropathies UK 3 Mill House Carre Street Sleaford Lincolnshire NG34 7TW Making an electronic bank transfer JustGiving or similar If you have created your own fundraising page through JustGiving or another online fundraising platform and linked it to Inflammatory Neuropathies UK, donations are automatically forwarded to us. Gift Aid The Government operates a scheme called Gift Aid that allows charities to claim 25p on every pound donated. So if you donated £100 to Inflammatory Neuropathies UK, it means that you’ll actually be giving us £125 at no extra cost to you. You can make your income go even further! Whether you’re hosting an online fundraiser via JustGiving or Enthuse, or you’re using a paper sponsorship form, consider asking your supporters to “tick the box” for Gift Aid. Gift Aid is a UK government scheme that allows charities like us to claim an extra 25p on every £1 donated by UK taxpayers, at no extra cost to you. So if someone donated £100 to you, we could get £125 for our work. That bonus £25 could allow us to fund an additional Peer Support session, or put it towards the cost of an online Get Together. If you're fundraising for an event and have a JustGiving or Enthuse page, then don't worry, those platforms will automatically ask your donors to “Gift Aid It” by presenting them with a check box. If you're using one of our paper sponsor forms, there will be an option to "tick the box", please encourage your donors to tick it - making sure they read the small print first! If you're making a one off or regular donation, please consider Gift Aiding the donation. Again, platforms like Enthuse will automatically ask you - but if you're making a donation via bank transfer, or cheque for example, we may send out a reminder periodically asking if you'd like to Gift Aid past donations. You can also print off, fill, and mail in a paper copy of our Gift Aid form. You can also complete the short form below. Please note - you cannot Gift Aid payments where you receive something in return such as tickets, raffles, entry fees, bake sale goods - these are considered a purchase rather than a donation.

  • CONTACT US | Inflammatory Neuropathies UK

    IN contact Our details Telephone (9am to 4pm Monday to Friday) Office 01529 469910 Freephone helpline (9am to 4pm Monday to Friday) 0800 374803 UK 1800 806152 ROI WhatsApp or Text 07878 090965 Email hello@inflammatoryneuropathies.uk Address Inflammatory Neuropathies UK 3 Mill House Carre Street Sleaford | Lincolnshire NG34 7TW As a listening organisation, we love hearing from people. Please feel free to reach out to us at any time whether it's about a particular service, question about conditions, or you just need to chat to someone who understands. If we can't take your call, please leave a message and we'll get back to you asap. Please note, we cannot offer medical advice so if you require medical guidance, please contact your GP or other healthcare professional. Your details Your question or comment First name Last name Phone Email Multi-line address Country/Region Address City Zip / Postal code How do you want to get involved? Choose as many as you like Peer Support (Talking to other people about your experience) Local Get Together Coordinator (Facilitating a local group) Local Champion (Talking to local clinicians, and people impacted by conditions) Online Champion (Supporting people impacted on online forums and meetings) Raising Awareness Research Support Other Contact consent We would like to use your contact details to communicate with you with news and information about Guillain Barré & Associated Inflammatory Neuropathies and ways to support us. Please choose how you would like us to contact you. Email Phone Post SMS Text Help fight spam - what day of the week follows Monday?* Monday Tuesday Wednesday Thursday Friday

  • Downloads | Inflammatory Neuropathies UK

    Downloads Factsheets Read More Information Guides Read More Awareness Read More Factsheets We want to provide information that is easy to understand, and accessible for everyone. That is why we have created a series of one page fact sheets. They are designed to give you a quick introduction into GBS, CIDP, MMN, Autoimmune Conditions, and Inflammatory Neuropathies. GBS CIDP MMN Autoimmune Conditions Inflammatory Neuropathies About Us If you want more in depth information then you can explore the detailed descriptions in our Information Hub over on the old GAIN website. Don't worry, a more robust and in-depth Information Hub is on its way here. These factsheets are ideal for sharing with friends and family to help explain conditions, or to act as an introduction to Inflammatory Neuropathies UK and what we do. We would love to hear your feedback on these. Let us know your thoughts by emailling hello@inflammatoryneuropathies.uk Information Guides Guillain-Barré syndrome, CIDP and other associated inflammatory neuropathies can have a devastating effect on those diagnosed and their family and friends, they can also be complex and difficult things to understand. Whether you've been diagnosed with an inflammatory neuropathy, you're supporting a loved one (or you're a carer), or you simply want to learn more about these conditions, we have created these information packs to help explain what is happening. Please feel free to download our information free of charge. (Downloads are currently only in English) GBS Information Book CIDP Information Book Quick Guide Awareness Posters One of the difficult parts of living with an Inflammatory Neuropathy is explaining to your friends, family, colleagues, and other peers what is happening to you. Despite being rare conditions, Inflammatory Neuropathies as a whole impact 1000s of people annually. Yet these conditions remain unknown to many in the general public. Events like the annual May Awareness Month are the perfect time to help educate the public. We have created some handy resources you may like to use on your social media, or download and print. Materials Some of materials include:

  • Set up a Fundraising Page | Inflammatory Neuropathies UK

    Learn how to set up a good fundraising page to help support Inflammatory Neuropathies UK. IN simple steps So you've decided you want to raise money to help Inflammatory Neuropathies UK support others. First, let us take a moment to say thank you . When we say we couldn't do it without you - it's not a throwaway comment, it's a statement of absolute fact. We could not do what we do without your help. With that in mind, we want to help you maximise your fundraising abilities, and the first part of that is setting up an excellent fundraising page. Let us guide you through a few simple steps to success. If, at any point, you think you could do with a little help in writing your story or getting better pictures - reach out to us. We're more than happy to help. It's the least we can do! hello@inflammatoryneuropathies.uk JustGiving 1. Visit JustGiving You can find us right here: justgiving.com/gbs Once you're on the page, look for a blue button called "Fundraise For Us", it should be at the top of the page. Click it! 2. Are you fundraising in memory of someone? If you're doing this in memory of someone special, hit "yes". You'll be prompted to share their name here. If you're not, hit "no". Then, in both cases.. Hit next. 3. Are you taking part in an activity? Take a moment and think about what you're doing. If you're taking on an established event like the London Marathon or Kiltwalk , click "I'm taking part in an event" and hit next. You'll then be able to search for event. If your event is there, click it and hit "Next", if it's not there, click "Create your own activity". If you're organising your own activity , or can't find yours on the established list, hit "I'm doing my own activity" and click next. You'll be asked to enter the type of activity (run, walk for example), then a name for the activity (Bake Sale for Inflammatory Neuropathies UK for example). You can also put in a date here if relevant. If you're not running an event , but would like to fundraise for a birthday, wedding or similar, click "Just Fundraising" and enter the details requested. Hit next. 4. What's your target? How much would you like to raise? You can change your target at any point, but having a goal helps encourage your supporters to donate. In fact, it increases donations by 17%. Hit next. 5. Personalise Your Page Writing your story can help raise 65% more ! It's a space to explain why you're doing what you're doing. If you had or have one of the conditions we support, perhaps discuss diagnosis or how it impacts you, and how in turn that impacts the challenge. If you're doing it in memory of someone special, tell us a little about them, we'd love to hear about who they were and what they meant to you. Hit next. 6. Page Cover A picture tells 1000 words, it also helps raise 23% more. Your photo is the first thing they will see on your page, and will be what people see when you share your story on social media. JustGiving recommend the more the merrier, something bold, and standout. Hit next. 7. Finalise Take a moment to read over the summary and make sure you've said everything you want to say. Let us know if we can keep in touch and then... Launch! You're all done... well nearly. 8. Share it You're doing something amazing, so don't be shy - share it with the world. Post on socials, encourage people who donate to share the link, and, if possible, share it via email or work noticeboards. 9. Local Press Local press love a good fundraising story, reach out to them to tell them what you're up to and why. They may just come out for a picture and you can share your page with your whole area! 10. Keep updating Pages that see updates - be it fitness tracker screenshots or progress check ins - often earn up to 8% more. Check in on JustGiving, treat it like a diary or another social media channel and let the world know what you're up to and how you're getting on.

  • Specialist Consultants | Inflammatory Neuropathies UK

    ​If you've been diagnosed recently with an Inflammatory Neuropathy, or are living with a historic diagnosis, you may wish to seek out some specialist expertise. You can speak with your GP or consultant about being referred to one of these specialists, or get in touch with a consultant’s secretary directly for further information. Specialist Inflammatory Neuropathies Consultants If you've been diagnosed recently with an Inflammatory Neuropathy, or are living with a historic diagnosis, you may wish to seek out some specialist expertise. This map shows Specialist Inflammatory Neuropathies Consultants across the UK which you may be referred to via your own Neurologist.

  • Podcasts | Inflammatory Neuropathies UK

    Podcasts Podcasts are a great way to get information, and to link in with the GBS and CIDP Community. We recently launched a new podcast series called IN all honesty, where Chief Executive Rich speaks to people with experience of GBS, CIDP, MMN, or another Inflammatory Neuropathy. It's an honest and open chat, with laughs, tears, and everything in-between. Guests include Carol Hooper (chair of Inflammatory Neuropathies UK), Clive Phillips (living with MMN and cycling 3,200km around France for awareness and fundraising), and Rory Coleman (athlete who has completed over 1,000 marathons, and over 200 since having GBS) Check it out by clicking the Spotify button. Or listen to Touching a Nerve with Rich and Al. Hosted by Rich Collins (Inflammatory Neuropathies UK CEO) and Al Bailey (former professional Rugby player diagnosed with CIDP), Touching a Nerve introduced our community to Lynn Rogers, a neuro science professor and endurance athlete who also happens to have CIDP. The duo also welcomed John Solosy who shared his experience of rowing 3,000 miles across the Atlantic for charity.

  • AGM Pre-Read | Inflammatory Neuropathies UK

    AGM Material To access the pre-read material for the 2025 Annual General Meeting, please click the headers below. If you have any questions or issues with these documents, please reach out to hello@inflammatoryneuropathies.uk . We look forward to seeing you in person or online on October 4th. Constitution Changes Information Accounts 2025 Trustee Pen Pictures

  • ABOUT US | Inflammatory Neuropathies UK

    IN troduction About us Inflammatory Neuropathies UK is the only UK charity exclusively dedicated to supporting people living with approximately forty conditions collectively known as Inflammatory Neuropathies. The most common conditions we support are Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP), and Multifocal Motor Neuropathy (MMN). We also support people living with POEMS, Lewis-Sumner/MADSAM, along with vasculitis neuropathies (when blood vessels become inflamed) like Wegener's Vasculitis and related conditions such as Sjögren's syndrome. We can help those with an inflammatory neuropathy associated with infections such as HIV neuropathies and Leprosy. What is an Inflammatory Neuropathy? To help understand what we do, it's useful to know what an Inflammatory Neuropathy is. Neuro means string, or nerve. Pathy , in the medical world, refers to a disorder or system of medicine. So Neuropathy simply means a condition impacting the nerves. An Inflammatory Neuropathy is when the Peripheral Nerves are damaged or impacted through inflammation (often caused by an autoimmune response - when the immune system misfires and attacks your body rather than illness). Your brain and spine are called the Central Nervous System . The Peripheral Nervous System is the network of nerves carrying messages to and from the CNS across the body. They work together as the Nervous System . Depending on the nerves impacted and the condition, an Inflammatory Neuropathy can cause pain, numbness, weakness, impaired coordination, or even paralysis and death. What we do We support people living with these rare conditions by providing medically sourced information, granting access to trained Peer Support volunteers, distributing personal grants , hosting an emotional support service , raising awareness , advocating politically , and commissioning research . We run monthly Get Togethers , and host a private and moderated Facebook group with over 4,000 members. Our history The Inflammatory Neuropathies UK name and website came into being on May 1st 2025, however our history stretches back over 40 years. In 1985, our charity was founded by Glennys Sanders after she faced Guillain-Barré Syndrome with little to no support network. From her home, she set out on a journey that would span four decades of care and support. Initially known as the Guillain-Barré Syndrome Support Group , the charity would eventually broaden its reach and become GAIN (Guillain-Barré & Associated Inflammatory Neuropathies). After consulting with members, service users, and our medical advisory board, it became apparent that the name GAIN was no longer fit for purpose in 2024. "Associated Inflammatory Neuropathies" just wasn't enough to include those living with CIDP and MMN. After extensive consultation, it was decided that Inflammatory Neuropathies UK was the correct and inclusive choice to encapsulate all that we do. We operate out of Glennys Sanders House, named after our founder, and still enjoy frequent visits and chats with the person who made this all possible four decades ago. MAB Read More Organisations we're part of Read More

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