Newsletters One of the most important things we do as a charity is make sure we’re really connecting with you — our community. Every day, you put your trust in us. You open up about your worries, lean on us for support, share your stories, and generously give to our cause. That means the world to us, and as you're so open with us, it’s only right that we keep you fully in the loop about our activities and actions. With that in mind, we’ve got two newsletters we send out regularly to keep you posted on everything happening in the Inflammatory Neuropathies UK world. First up is our monthly IN brief - a quick, four-page snapshot that keeps you in the know about what we’re working on and what’s coming up. Then there’s our quarterly Lowdown - this is roughly twenty pages packed with updates, personal stories from our incredible supporters, and a real behind-the-scenes look at what’s been going on across the charity. If something’s happening at Inflammatory Neuropathies UK, you’ll hear about it there. You can find an archive of our older Updates and Lowdown's over on our previous GAIN website, and scroll down for the latest from Inflammatory Neuropathies UK. Newsletter Archive (GAIN) Previous editions: IN brief | June 25 | #1 IN brief | July 25 | #2 IN brief | August 25 | #3 IN brief | October 25 | #4 IN brief | November 25 #5 IN brief | January 26 | #6 INdepth | May 25 | #1 INdepth | September 25 | #2 INdepth | December | #3 Our latest IN brief can be enjoyed below, or downloaded by clicking here

Inflammatory Neuropathies UK is the only charity in the UK and Ireland dedicated to supporting people with GBS (Guillain-Barré syndrome), CIDP, MMN, and over 40 other Inflammatory Neuropathies. We provide support, information, emotional counselling access, peer support, personal grants, and fund research. IN this together We are Inflammatory Neuropathies UK, the only UK charity which is completely dedicated to providing information and support to people impacted by Guillain-Barré Syndrome (GBS), CIDP, MMN, and other Inflammatory Neuropathies. That all sounds pretty complex, very scary and somewhat difficult to understand doesn’t it? It can be a lot to deal with. Not only has your world been turned upside down, but you are having to cope with a load of big words and long names you have never heard of as well. That’s why we exist. We are going to try to make everything as simple as we can for you. We will try to explain, translate, inform, and answer your questions so everything seems straightforward and clear. We can offer you personal grants, emotional support, online forums, and much more. We can support you through a community of people who have experienced the same things as you, so you can help each other. We even raise funds for research that is vital for these conditions. We work right across the UK and we can also offer advice and support to those living in the Republic of Ireland as well. We are here for you whether you have one of these conditions yourself, you are supporting a friend or a family member, you are a medical professional, or you would like to help us by raising funds. We are in this together

Volunteer We are a small charity and, as such, really depend on the incredible help we get from our volunteers. This amazing team of people work with us so we can better raise awareness, reach and support more people and, ultimately, realise our goals. Most of our volunteers have lived experience of GBS, CIDP, MMN or a related condition, but, in order to do more, we need more people to help. Could that be you? If you feel you can help then please get in touch - there are a myriad of ways volunteers can contribute to our work; a few of which are listed below. Providing Peer Support Connecting with people impacted by GBS, CIDP, and other Inflammatory Neuropathies. Using your lived experience to provide information, advice, and guidance. Facilitating and Supporting a Local Get Together Organise a space where people can come together and mutually support each other over a cup of tea. Being a Local Champion Be our representative in your local area, You can do this by linking into local clinical facilities and community groups and supporting local people impacted by any of the Inflammatory Neuropathies. Being an Online Champion Be our representative online. Support those impacted by GBS, CIDP, or other conditions in online forums and meetings. Raising Awareness Word of mouth speaks volumes. Support us by raising awareness about Inflammatory Neuropathies - and us. The more people know, the more they too can help. Research Support Data is king. And we need your help in tasks like data collection. As you can see our needs are very varied. Just choose what you feel you would enjoy the most. We will do all we can to help by being super flexible regarding time commitments and also helping you by providing the following: Induction and training Ongoing support and supervision An annual appraisal Regular volunteers meetings and updates Resources and materials Access to our team when you need them We hope you will join us. If you are interested, simply fill in the form below.

IN troduction About us Inflammatory Neuropathies UK is the only UK charity exclusively dedicated to supporting people living with approximately forty conditions collectively known as Inflammatory Neuropathies. The most common conditions we support are Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP), and Multifocal Motor Neuropathy (MMN). We also support people living with POEMS, Lewis-Sumner/MADSAM, along with vasculitis neuropathies (when blood vessels become inflamed) like Wegener's Vasculitis and related conditions such as Sjögren's syndrome. We can help those with an inflammatory neuropathy associated with infections such as HIV neuropathies and Leprosy. What is an Inflammatory Neuropathy? To help understand what we do, it's useful to know what an Inflammatory Neuropathy is. Neuro means string, or nerve. Pathy , in the medical world, refers to a disorder or system of medicine. So Neuropathy simply means a condition impacting the nerves. An Inflammatory Neuropathy is when the Peripheral Nerves are damaged or impacted through inflammation (often caused by an autoimmune response - when the immune system misfires and attacks your body rather than illness). Your brain and spine are called the Central Nervous System . The Peripheral Nervous System is the network of nerves carrying messages to and from the CNS across the body. They work together as the Nervous System . Depending on the nerves impacted and the condition, an Inflammatory Neuropathy can cause pain, numbness, weakness, impaired coordination, or even paralysis and death. What we do We support people living with these rare conditions by providing medically sourced information, granting access to trained Peer Support volunteers, distributing personal grants , hosting an emotional support service , raising awareness , advocating politically , and commissioning research . We run monthly Get Togethers , and host a private and moderated Facebook group with over 4,000 members. Our history The Inflammatory Neuropathies UK name and website came into being on May 1st 2025, however our history stretches back over 40 years. In 1985, our charity was founded by Glennys Sanders after she faced Guillain-Barré Syndrome with little to no support network. From her home, she set out on a journey that would span four decades of care and support. Initially known as the Guillain-Barré Syndrome Support Group , the charity would eventually broaden its reach and become GAIN (Guillain-Barré & Associated Inflammatory Neuropathies). After consulting with members, service users, and our medical advisory board, it became apparent that the name GAIN was no longer fit for purpose in 2024. "Associated Inflammatory Neuropathies" just wasn't enough to include those living with CIDP and MMN. After extensive consultation, it was decided that Inflammatory Neuropathies UK was the correct and inclusive choice to encapsulate all that we do. We operate out of Glennys Sanders House, named after our founder, and still enjoy frequent visits and chats with the person who made this all possible four decades ago. MAB Read More Organisations we're part of Read More

​If you've been diagnosed recently with an Inflammatory Neuropathy, or are living with a historic diagnosis, you may wish to seek out some specialist expertise. You can speak with your GP or consultant about being referred to one of these specialists, or get in touch with a consultant’s secretary directly for further information. Specialist Inflammatory Neuropathies Consultants If you've been diagnosed recently with an Inflammatory Neuropathy, or are living with a historic diagnosis, you may wish to seek out some specialist expertise. This map shows Specialist Inflammatory Neuropathies Consultants across the UK which you may be referred to via your own Neurologist.

Win up to £25,000 each at just £1 per entry! IN luck Play our lotteries Win up to £25,000 every week while supporting Inflammatory Neuropathies UK! Keep reading, or click here to scroll to our other lottery - North Kesteven Lottery . Through our trusted provider, Unity Lottery, you can win a massive jackpot for just £1. Simply click the play link below, and pick how many £1 entries you'd like to play each week, fill in your details, and then you're in the game. Each Friday, a 6 digit winning number is randomly generated via a Gambling Commission approved Random Number Generator, and if your lucky numbers come up you'll walk away with a prize. The best bit is you don't need all 6 numbers to win a prize: 3 digit match = 5 entries into the next draw 4 digit match = £25 5 digit match = £1,000 6 digit match = £25,000 Play by clicking here Players must be 18+ Learn more about the game by visiting: www.unitylottery.co.uk/rules Gambling can be addictive, for help and access to support, please visit: www.gambleaware.org/home For further information, visiting the Gambling Commission: www.gamblingcommission.gov.uk Here's how your entry fee is broken down: Us=50% Prizes=18% Expenses=32% Your chances to win are: 3 digit match = 1 in 69 4 digit match = 1 in 823 5 digit match = 1 in 18,518 6 digit match = 1 in 1,000,000 Unity is administered by Sterling Management Centre Limited, licensed and regulated in Great Britain by The Gambling Commission under account number 3137 North Kesteven Lottery Win up to £25,000 every week while supporting Inflammatory Neuropathies UK through the North Kesteven Lottery. Drawn on a Saturday and at just £1 a ticket, your weekend could kick off with a true bang with £25,000. Not only that, you can enter a super draw to win a £2,000 luxury getaway, plus £2,000 spending money. Winners will be notified by email. 2 digit match = 3 extra tickets 3 digit match = £25 4 digit match = £250 5 digit match = £2,000 6 digit match = £25,000 Play by clicking here Players must be 18+ For the rules of the game, visit www.nklottery.co.uk/game-rules Gambling can be addictive, for help and access to support, please visit: www.gambleaware.org/home For further information, visiting the Gambling Commission: www.gamblingcommission.gov.uk Your entry money is broken down like this 50% to your chosen cause (in this case Inflammatory Neuropathies UK), 20% goes to admin and VAT, with a further 20% going to the prize fund. We're happy to report that 10% also goes to other good causes. This means that you're supporting two causes with one entry. Your chances to win are: 3 digit match = 1 in 56 3 digit match = 1 in 556 4 digit match = 1 in 5,556 5 digit match = 1 in 55,556 6 digit match = 1 in 1,000,000 1.1 North Kesteven Lottery ("the Lottery") will be operated as a Local Authority Lottery under the Gambling Act 2005 as amended ("the Act") 1.2 The Lottery is promoted by North Kesteven District Council and conducted for the benefit of the good causes listed from time to time as participating good causes. 1.3 The Lottery is administered by Gatherwell Ltd, Lytchett House, 13 Freeland Park, Wareham Road, Poole, Dorset, BH16 6FA, acting for North Kesteven District Council as the participating Society. 1.4 Gatherwell is certified as an External Lottery Manager ("ELM") by the Gambling Commission (Account No: 36893 )

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IN focus Latest Keep up to date with the charity and the wider world of Inflammatory Neuropathies. Visit our blogs for some easy to understand information on GBS and CIDP. Catch up on real stories from real people, and access an archive of Newsletters. Newsletters Monthly updates and quarterly newsletters - keep up to date with all things Inflammatory Neuropathy. Read More Your Stories One of the most powerful ways for us to spread awareness is via real life stories. Read More Blog About the conditions we support, and the thoughts and views of the Inflammatory Neuropathies UK team Read More

Frequently asked questions Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Duis aute irure dolor in reprehenderit in voluptate velit esse cillum dolore eu fugiat nulla pariatur. Excepteur sint occaecat cupidatat non proident, sunt in culpa qui officia deserunt mollit anim id est laborum CIDP IvIg Double Vision Diagnosis CIDP & AIDP Question 3 Question 4 Question 5 etc CIDP Ivig Double Vision One of our members with CIDP has been struggling with double vision for the last few days following his latest treatment of IvIg. He has been referred by his optician to an ophthalmologist, but unfortunately, has to wait two weeks before he can be seen. He has been receiving IvIg for two years, and this is the first time the problem has occurred. He has emailed his neurologist but hasn’t had a response yet, and in the meantime was wondering if it was something we were familiar with, as he is quite concerned. Is double vision a recognised symptom of CIDP / treatment with IvIg, and if so, is it likely to be long term or something that should pass relatively quickly? Is it something that spectacles could help correct or is he stuck with it for as long as it lasts? Answer: He does need to be seen. It could be a viscosity problem with the ivig. It may well settle. Sometimes prism glasses help but a diagnosis is needed. Diagnosis CIDP & AIDP We have come across two people this week who have been diagnosed with CIDP and AIDP concurrently. Is this something you’ve encountered? Answer: A few patients get recurrent attacks of GBS with recovery in between. I suspect this is all one disease not two but It is what you call it is tricky. Question 3 Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Answer: Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Duis aute irure dolor in reprehenderit in voluptate velit esse cillum dolore eu fugiat nulla pariatur. Excepteur sint occaecat cupidatat non proident, sunt in culpa qui officia deserunt mollit anim id est laborum Question 4 Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Answer: Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Duis aute irure dolor in reprehenderit in voluptate velit esse cillum dolore eu fugiat nulla pariatur. Excepteur sint occaecat cupidatat non proident, sunt in culpa qui officia deserunt mollit anim id est laborum Question 5 Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Answer: Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Duis aute irure dolor in reprehenderit in voluptate velit esse cillum dolore eu fugiat nulla pariatur. Excepteur sint occaecat cupidatat non proident, sunt in culpa qui officia deserunt mollit anim id est laborum

IN teract Get involved If you or someone you care about has been impacted by an Inflammatory Neuropathy, it’s natural that you might like to get involved with GAIN’s mission of raising awareness and support. Luckily, there’s all sorts of ways you can contribute your time, skills and experience that will hopefully suit any and all abilities. We’ve split these into a few helpful categories below, so scroll to find out how you can join the team, make kind donations, or get involved in exciting events. Is there something in mind you’d like to do to help but don’t see listed? Just get the office a quick call or email, we’d love to chat. Events We often have free supporter places available in major UK marathons, swims and other events. Claim your space, shirt and our support: Read More Become a Trustee Expertise in accounting, company secretary, HR, charity law or other Board level skills? Learn about becoming a Trustee. Read More Research Not only can your fundraising help us provide emotional support and practical advice, your support can also facilitate cutting edge research. Read More Fundraise We couldn't do what we do without the support of individuals, groups, and organisations. Click here to get invo lved. Read More Membership Registration Help shape our direction, influence our decisions, and guide our priorities. Become a free member, vote, and attend our AGM. Read More Volunteer We're a small but committed team. Each of our volunteers plays an integral role in our support, from peer support to Get Together facilitators. Read More 200 Club 200 Club is an easy way to raise funds for our support of conditions while at the same time offering you the chance to win monthly cash prizes. Read More

Inflammatory Neuropathies UK create short and easy to access blogs that describe in understandable, simple language, the impact of Guillain-Barré syndrome (GBS), CIDP, MMN, and other Inflammatory Neuropathies. We also use this section for our Chief Execs views on the latest in UK policy that impacts people with these conditions, and personal, real life stories of people living with GBS, CIDP, MMN and more in the UK. Blogs The latest news and opinions from the Inflammatory Neuropathies UK team. We also have a blog series where we take an accessible look at the conditions we support. These started last year with GBS, and our CIDP blog series came to an end in April 2025. Filter the blogs via: GBS Blog Series CIDP Blog Series Budget 2025 - Inflammatory Neuropathies UK's Response If you're living with GBS, CIDP, MMN, or another Inflammatory Neuropathy, you may have questions about how today's budget impacts you. Are you having trouble getting your head around what was said, or just fancy a quick summary of the key points? Well, if so, our Chief Executive is here with his traditional reflection on the budget and what it means for people impacted by Inflammatory Neuropathies, and for the charity itself. To be honest, there wasn’t a great deal of ant New Specification for Adult Neurology Services - Rich's View Yesterday, NHS England published a new service specification for Adult Neurology Services. Our Chief Executive, Rich Collins, fed back... What is Peer Support? We've been talking about Peer Support for GBS, CIDP, MMN, and the other conditions we support at the Inflammatory Neuropathies UK office.... The 10 year plan | our thoughts So, after much consultation, feedback, and discussion, the government today released its new 10 year plan. Here at Inflammatory... Say hello to Inflammatory Neuropathies UK Inflammatory Neuropathies UK's Chief Executive, Rich Collins, on our rebrand: Well, this is very big news. GAIN is changing its name to... CIDP and its Variants In our final blog on CIDP, we are going to have a quick look at the variants of CIDP. If you want more information on CIDP then have a... 1 2 3 4

Downloads Factsheets Read More Information Guides Read More Awareness Read More Factsheets We want to provide information that is easy to understand, and accessible for everyone. That is why we have created a series of one page fact sheets. They are designed to give you a quick introduction into GBS, CIDP, MMN, Autoimmune Conditions, and Inflammatory Neuropathies. GBS CIDP MMN Autoimmune Conditions Inflammatory Neuropathies About Us If you want more in depth information then you can explore the detailed descriptions in our Information Hub over on the old GAIN website. Don't worry, a more robust and in-depth Information Hub is on its way here. These factsheets are ideal for sharing with friends and family to help explain conditions, or to act as an introduction to Inflammatory Neuropathies UK and what we do. We would love to hear your feedback on these. Let us know your thoughts by emailling hello@inflammatoryneuropathies.uk Information Guides Guillain-Barré syndrome, CIDP and other associated inflammatory neuropathies can have a devastating effect on those diagnosed and their family and friends, they can also be complex and difficult things to understand. Whether you've been diagnosed with an inflammatory neuropathy, you're supporting a loved one (or you're a carer), or you simply want to learn more about these conditions, we have created these information packs to help explain what is happening. Please feel free to download our information free of charge. (Downloads are currently only in English) GBS Information Book CIDP Information Book Quick Guide Awareness Posters One of the difficult parts of living with an Inflammatory Neuropathy is explaining to your friends, family, colleagues, and other peers what is happening to you. Despite being rare conditions, Inflammatory Neuropathies as a whole impact 1000s of people annually. Yet these conditions remain unknown to many in the general public. Events like the annual May Awareness Month are the perfect time to help educate the public. We have created some handy resources you may like to use on your social media, or download and print. Materials Some of materials include: